As early as April 2016, the State Council Office issued the guiding opinions on promoting and standardizing the application and development of health and medical big data, which clearly pointed out that "efforts should be made to promote the interconnection, integration, openness and sharing of government health and medical information system and public health and medical data, eliminate information islands, and actively create a development environment to promote the safety, standardization and innovative application of health and medical big data "Internet plus health care" explores new modes of service, nurture new formats, and strive to build people's satisfied medical and health services.
From the national to local governments, the government has fully realized the importance of big data, and the establishment of full-time institutions can really urge and educate all departments at all levels to pay more attention to big data construction, thus helping local governments better organize and collect data, and creating a better environment for the development of big data, artificial intelligence and other related industries.
Promoting data "compliance" utilization
However, we can not see the progress of the whole industry from the specific role of data disclosure.
Taking Guizhou as an example, Guizhou big data development and Management Bureau is responsible for formulating and implementing technical specifications and standards for big data and information industry; coordinating the construction and management of data resources to promote the political, civil and commercial use of big data; coordinating the collection, registration and management, sharing and opening up of government data; promoting the convergence, integration and interconnection of social data; Overall promote the construction of big data security system and security guarantee; promote the development and management of big data industry in the whole province, and promote the development of core business, related business and derivative business form of big data
For the medical big data industry, realizing the sharing and opening of big data, formulating relevant industry standards and norms, and improving the security system are undoubtedly the top priority.
Some people in the industry believe that it is no longer a problem at the technical level, and the key lies in the confirmation of data rights - medical big data, medical data and personal health data are sensitive data, and the definition of ownership, right to use and application scenarios are prerequisites for data sharing and use. If personal data, genetic data or health data are randomly traded or abused, it may cause serious losses.
Recently, the National Health Commission has published the national health and medical big data standards, safety and service management measures (Trial), which mainly involves three aspects——
In terms of standard management, the principles of health and medical big data standard management were formulated, multi-party participation in standard management was advocated, and the health and medical big data standard management platform was improved.
In terms of safety management, it is necessary to clarify the scope of health and medical big data security management, establish and improve relevant safety management systems, operating procedures and technical specifications. Establish a talent training mechanism for health and medical big data security management to ensure information security from multidimensional perspective.
In terms of service management, the management system of "unified hierarchical authorization, classified application management, and consistent rights and responsibilities" was implemented to distinguish the functional positioning of responsible units in the production, collection, storage, use, transmission, sharing, exchange and destruction of health and medical big data, and strengthened the sharing of health and medical big data.
Therefore, the value of "big data bureau" in the medical field, or the key is to promote the establishment of medical big data platform, the formulation of standard application standards, and the clarification of the rights, responsibilities and interests of big data on the basis of breaking data barriers.
"Balance beam" of management and release
At present, medical big data has formed a huge industrial chain. In the whole industry, there are even unicorns like zero krypton technology with a valuation of 1 billion US dollars. There are also well-known enterprises such as global medical, carbon cloud intelligence, and speculative technology. Small innovative enterprises are not counted, and even the national team is entering.
Big data is constantly empowering clinical diagnosis and treatment and scientific research, pharmaceutical R & D and marketing, and chronic disease management of patients. To a certain extent, it has effectively improved the efficiency and quality of medical treatment, reduced the cost of medicine, and played a positive role in promoting the construction of healthy China.
Therefore, the "big data bureau" and other relevant management organizations shoulder an important responsibility. On the one hand, it is necessary to strengthen the supervision of big data to ensure the safe application of medical big data; on the other hand, it is more important to actively promote the sharing of big data, remove the stumbling blocks in the development of big data, and promote industrial development.
Relevant industry insiders said, "medical big data is a strategic resource. With the accumulation of genetic data and health data, it is becoming more and more diversified and of higher value. But along with it, the risk of loss and security is also increasing. Regulation is becoming more and more necessary. At the same time, it should be considered that if the relevant national departments adopt strict control measures or excessive supervision, the industry may shrink or stagnate. "
A good balance between "management" and "release" is the core proposition for big data governance in a period of time in the future.